Wednesday, August 31, 2005
Emily was transferred to UCLA yesterday. She and Kathy left at about 2pm in an ambulance. The trip took about 8 hours and Emily was in a lot of pain. Kathy said it was the worst ride she has ever taken. Once there, the medical team immediately started doing tests on her. Kathy told me that the place is a nightmare and was really scared. Emily is temporarily in an isolation room in the PICU but she will be placed in a bed in the open ward. There will be no privacy (other than a curtain) and it will be very difficult to contact them. The phones don’t work so she has to go down the hall to a pay phone. She is very worried that Emily will not do well in this environment. In addition to all that, Kathy will not be able to stay with her. This morning she will be working with the hospital to find a place to stay that is close (walking distance). Of course, the insurance will not cover the living expenses and these can be quite high (maybe as much as $100 per day for the room). Hopefully, they will be able to help with all the options. We did apply for help with the Nick and Kelly Children’s Heart Fund. They specialize is help people with travel expenses related to medical treatment.
This is all for now. I am just sick about all this. I wish I were there but I can’t be…More later.
CORRECTION: If you would like to help, here is the account information: account name Emily Brightwell at Wells Fargo bank. You should not need an account number to contribute. If for some reason the number is required please send me an email. Do not worry about security as there are only two people authorized to remove money from this account and it must be done in person with ID.