The State of Things

Emily got home from the hospital on Sunday afternoon. They think that whatever was happening was related to her medications. They made some adjustments and sent her home. She goes to the doctor tomorrow for more tests and an echo. She is feeling better but she is not 100%.

All of this has been really hard on her. Since she has been home from LA she has had alot of time to think. She has come to realize how bad things really were and I think the post traumatic stress disorders is setting in. In some ways she is more affraid today than she was in the hospital waiting for a transplant. It may be time for her to see a different kind of doctor.

More later...

Long Time Without an Update

I am sorry that it has been so long without an update but life has been busy for us all. A couple of weeks after Emily got out the hospital we went to UCLA for the Pediatric Transplant Holiday Party. It was a really good time and it is hard to believe how many transplant patients the people at UCLA have helped.

Christmas was really nice this year, much better than we were expecting. Kathy and I got what we wanted(see picture) and the girls got a alot of presents!

All in all things have been going very well. Kathy and I have been working alot and family life is keeping us very busy. Emily has been feeling good for the last several weeks (though as I write this she is heading back to PCH for some tests - been feeling a little yucky the last couple of days).

I will try to to write more often and I may begin to branch out in my subject matter. There is so much going on and I am finally able to think about things other than family issues. Feels good to be able to think about the trivial again!